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(JD) · May 01, 2009, 12:00 PM

Perhaps I've only added to your anguish, and should have waited until you tell the entire story so as not to suggest anything you've already tried, as that obviously upsets you.

I don't do the "oooohhh what a pity" type posts very well.

I think I do understand though, and was trying to find some idea that might send you onto a new idea... since you are so mired in the negative with it all. It does sound terribly negative, and isn't any way to live. But what else could I say? I doubt that, "suck it up we all have horrible things to live and die with" would have hardly been supportive. And it isn't who I am. I am always looking for the glimmer in the distance.

You still have choices. If you feel you have completely exhausted all of the resources and there simply is no hope for cure or slowing of this disease, what are they? You can continue and only focus on panicked researching, you can stop and try to live what life you have left to it's fullest, you can lie down and die, or even some other choice maybe.

I'm here to support you in whatever choice you make, except to lie down and die. You wouldn't need PC for that.

I am terribly sorry you feel you are at the end of the good life, and indeed you may be. But I speak from experience that I have been at that point (more than once actually) where there was NO hope... yet here I am. If it happened to me, and it's happened to others, it can with you. I just want to try and give you that glimmer you might have ahead.