Hey there, yeah, scary taking that step, especially if you have experienced nasty side effects from coming off it. I have taken it over the years and didn't find to many problems, but everyone is different. Seroquel is also good and doesn't have the same weight gain and blood sugar scenario that I know of. I have a friend who is the same........if she came of zyprexa, it would be dangerous for her but she has not explored other alternatives that I know of.

I just came of lithium due to health reasons so now I just have my trusty diazepam if I need it. I was terrified coming off it but i had to know if it was contributing to health problems. Maybe take the risk but have good backup if you need it. Ask your nurse about seroquel. Do you have a psychiatrist?

Good luck sweetie........I feel for you.

Keep us posted.