Thread: Its Lupus!!!!!
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inkblot
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Member Since Oct 2003
Location: Chicago
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Default May 12, 2009 at 09:18 PM
 
Thanks, everyone. I still need the real, official diagnosis. Problem is I am still scared to talk at appointments. I was told years ago I had some sort of antibody or antibodies, and seemed to have polymyositis, dermatomyositis, lupus or fibromyalgia. I have been suffering all this time and heard so many times that "the tests are normal" because they have been doing the wrong tests and looking for the wrong things! Because of all the problems developing gradually the doctors didn't believe my complaints for a long time and it has scarred me emotionally and mentally. The only one who does believe me is my own doctor because of the emails I send him off-the-record. But he can't use them and I somehow have to get EVERYTHING from all these years to come out all at once at one, single appointment. It's scary! It takes me back to the first time a few years ago when one doctor repeatedly told me "nothings wrong". Well, SHE was wrong. It sounds like she missed what would possibly be a key sign of lupus on one of the tests. I don't know. I just know that all I care about right now is to finally get everything treated. I have so much pain sometimes, and problems with my heart, kidneys, nerves and more because of it all. I don't care if there is a cure at this point. I just want to feel better.

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