Piper,

I'd recommend seeing an epileptologist. They are neurologists who have specialized in treating seizure disorders ~ epileptic as well as non-epileptic. Go to them with the results of your tests.

I'd hypothesize that the activity seen in your EEG is pre-ictal abnormality. Pre-ictal is electrical activity that occurs before a seizure. The focus would have slightly higher activity than normal. Ictal being the seizure itself, with high activity in the focus. Post-ictal is after the seizure, and the activity is slower than normal. Seizures can begin at any age, but do typically begin in childhood (infancy-teens) and become relatively common with elderly adults.

My personal experience: I began having simple partial and complex partial seizures in my youth. It wasn't recognized at all until I was 26 years old, however, after a complex partial secondarily-generalized and became tonic clonic. I did have surgery to remove the focus 3 years ago, yet still continue to have dissociation. From what I've read, those with dissociation can have epilepsy. Those with both are usually given the diagnosis of epilepsy (rather than both). Why, I don't know, but it is confusing. I'm now 38 years old and am working to understand exactly what is wrong with me. It can be frustrating!

Hope that this post helps you a little. Check out this site for info on epilepsy: http://www.epilepsy.com/EPILEPSY/types_seizures

Shez