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arcanum · Jun 13, 2009, 01:00 PM

I was diagnosed with EDS ~ benign hypermobility syndrome, fibromyalgia and CFS a few years ago. I take amitriptyline, pregabalin and tramadol for the pain, tho most days it is still there. Nights are bad, trying to get to sleep when my body feels like its collapsing in on itself, everything screams when i move and like someone said before even my hair hurts but mornings when its damp and cold and i feel like a dead spider and cant get dressed its more than a little depressing! Hopefully i am getting some silver ring splits soon for 3 fingers, they are expensive but i will get them all bit by bit if they help!

Mostly i am pretty resigned to the fact that my body doesnt work properly and i am rapidly losing my independance, i cannot go anywhere on my own, cook proper dinner ~ all sorts of things i once took for granted. I certainly dont like having to swap a love of walking in the mountains to one of walking with a stick and possibly needing a wheelchair in the future, but i have fantastic support and much to look forward to and be happy about. I am going to get married again and though i might say im too young, i am looking forward to my first grandchild one day.

I am not feeling my best, my back and neck ache and my fingers, (as per usual) im tired but im having a reasonable head day so far. My fiance is home from work now and tho all i can see is his sleeping form on the webcam, he calms me and makes me smile.

Have a good day everybody