Only you know how comfortable you are sharing this information with your family. Perhaps you might recommend the site for your husband to check out if he's having trouble understanding what you're going through. I'm very open with my own kids and have been since they were small. It's very important that they know what's going on in case they have to face this in the future. I don't treat it like a secret because I think it's SO important for them to know the symptoms and dangers involved.