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Old Aug 04, 2009, 10:28 PM
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spiritual_emergency spiritual_emergency is offline
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Member Since: Feb 2007
Location: The place where X marks the spot.
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Quite some time ago I was informed that I had never actually been banned from schizophrenia.com. Apparently, many schizophrenics merely misinterpret server downtime to be the equivalent of repeatedly trying to log-in and not being able to do so while the server is up and running.

That explanation didn't ring quite true to me and neither do I have any cause for taking them at their word but today, I saw a post from a member insisting that not only does no one ever recover from schizophrenia but those who suggest it's possible are suffering from a "mental condition".

I felt compelled to respond and lo and behold, was able to log-in. In my response I noted that many people have made full recoveries. To demonstrate the validity of that claim, I cited the names of several professionals -- all doctors -- who had made full or partial recoveries: Dr. Daniel Fisher, Dr. Rufus May, Dr. Patricia Deegan, Dr. Christiane Northrup, Dr. Frederick Freese, Dr. Ronald Bassman, Dr. Edward Whitney...

This prompted a moderator to edit their own response in that thread to add the following notation to their post:
You should also have a look at page 113 where Torrey indicates "the recovery model " has no foundation in scientific studies or data. ... Also have a look at page 435 " Scientologists, Anti-Psychiatrists, and Consumer Survivors".
I'm not sure if that moderator meant to imply that all those doctors must all be scientologists, anti-psychiatrists or consumer survivors, or if I was. I didn't get the chance to ask.

Meantime, another member noted that his own physician had told him that upwards of 10% of people are incorrectly diagnosed and this is the rationale for why some people recover. The original poster responded:
Your statement has nothing to do with what I am talking about. Those 10% were not cured. They were mistaken to have an illness, which later turned out that they didn't have. That is why they did fine when they went off the medication. No cure was involved.
In response, I quoted Dr. Daniel Fisher...

Quote:

We who have recovered from mental illness know from our personal experience that recovery is real. We know that recovery is more than remission with a brooding disease hidden in our hearts. We have experienced healing and we are whole where we were broken. Yet we are frequently confronted by unconvinced professionals who ask, "How can you have recovered from such a hopeless situation?" When we present them with our testimonies they say that we are exceptions. They call us pseudoconsumers. They say that our experience does not relate to that of their seriously, biologically ill, inpatients.

I recently re-experienced this negative attitude about recovery. A friend of mine, during a discussion in a psychology class, said she knew someone who had schizophrenia, recovered and became a psychiatrist. "He must have been misdiagnosed," was the professor's response. So my friend reviewed my earlier symptoms with me. I met the DSM IV criteria for schizophrenia in the interval from 1969-74. When she presented my history to her professor, he reversed his position and said that the diagnosis of schizophrenia must have been correct. He doubted I had recovered and said, "we now have a case of an impaired physician."

By having earned board certification in psychiatry, having worked as medical director of a community mental health center for 11 years and having directed the National Empowerment Center for 3, years I have proven that I am not an impaired physician. This episode reveals the depth of negative expectations which are taught to students. After all, mental illness is considered a terminal condition for which there is no cure. Therefore anyone who appears to have recovered must not have been sick. This leaves no one with first hand experience of what helps and what hurts to speak for those who currently cannot speak due to their distress...

Source: Healing and Recovery are Real
When asked by yet another member how I defined full (clinical) recovery, I quoted Dr. Courtenay Harding's definition. (Note that personal definitions of recovery are always self-initiated and may include using medication for coping with ongoing or a reoccurence of symptoms).

Quote:
... when we talk about subjects who are recovered, we're talking about no medications, no symptoms, being able to work, relating to other people well, living in the community, and behaving in a way that you would never know that they had had a serious psychiatric disorder ...

Source: Schizophrenia and Hope
Unfortunately, all those posts of mine are gone now. All that remains is the original poster's insistence that there is no such thing as cure (full recovery) with a brief reference to the erasure that took place and the moderator's assessment...

Quote:

The poster you mention above has never actually been diagnosed with anything. She only believes she had schizophrenia and has recovered. The research on schizophrenia in recent years has conclusively shown that the approaches favored by her are not helpful to most schizophrenics in treating their illness. She may be a great and inspirational writer to you but to me it mostly looks like ********. She is well aware that she is not welcome here.

Cannonier

Source: schizophrenia.com
For the record, I had mentioned that I had never received psychiatric treatment. Those who know of my history know this is because I didn't know to go to the hospital. Some of them also know that I lived in a remote community at the time and psychiatrists were hard to come by -- they were, in fact, flying them in on a one-day per week basis at that time. I once spent eight months on a psychiatrist's waiting list and the week I was due to finally get in, my father-in-law died and I had to go out of town. When I returned, I just never bothered to call and add my name back to the waiting list; I was already getting well with my own efforts.

In one of my responses that was removed I'd also noted I had two children who had experienced psychosis but of course those posts were not allowed to stand because we wouldn't want to create the impression that I might have had a serious "mental condition" that I had recovered from or share what helped me do so. After all, according to the moderating department of schizophrenia.com no one whose been ill has ever recovered because there is no such thing as cure. Therefore, it's quite understandable why they would want to sweep away any historic details relating to my own experience, my children's, and even my birth father's who was in and out of psychiatric hospitals for reasons I never knew.

Meantime, I had also added my response to the original post above -- the one related to John Read's work. That post was also removed by the moderators. The storyline the reader is supposed to go with is that the original article was the work of antipsychiatrists at Psych Central and the original study was never accepted by mainstream professional journals. Therefore, both are suspect. Besides... as many good schizophrenics know, their job is not to point out factual, verifiable truths, it is to comply with the lies. Those who do not comply will be punished in some fashion. Fortunately, as the moderator pointed out, my own diagnosis is in doubt -- I never was a "good schizophrenic" so I went ahead reposted the response that verified John Read's work had been published.

Meanwhile, for reasons I cannot comprehend, factual information seems to frighten the moderating team at schizophrenia.com, although if you ask me... that's just crazy.

=================================================

Edited to note that the re-post I'd made demonstrating that John Read's work was published in a peer-reviewed professional journal has been removed (again). It may be worth noting, the moderator whose opinion of my posts was "********" was also the same moderator who made the statement that Psych Central publishes "antipsychiatry" articles and that John Read's work had never been published in an accredited journal. There does appear to be some degree of personal bias at work.

I had once said that the moderating team of schizophrenia.com was cultish. I would have to maintain that they do not have appear to have changed since the last time I swung through. The truth is, many people recover from serious mental illnesses -- schizophrenia, psychosis, bipolar disorder -- I'm one of them. I anticipate that my child will also make a full recovery. Unfortunately, recovery is not something that is permitted to happen at schizophrenia.com.

More personal stories of recovery including those of many of the professionals I mentioned above can be found here: Voices of Recovery. Another respondent in that thread has also added this name to the list: Janet Frame

~ Namaste

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~ Kindness is cheap. It's unkindness that always demands the highest price.

Last edited by spiritual_emergency; Aug 05, 2009 at 02:18 AM.