Yeah, I keep on trying (and feeling stupid for doing so) because what other choice do I have...well, yeah, but that's not really the goal, is it? If I felt better I'd be more excited about the prospect of living a little longer. As it is I don't figure I have much of a chance at a remotely healthy future, so...

But enough of that. Rant on: I haven't totally given up in spite of the professionals' ignorance, inattentiveness, disappearing acts, deflection of responsibility, etc., etc., ETC.! One afternoon of google and I knew what I should and shouldn't be on (and yes, I checked for interactions on everything). It's like these people want to try you on stuff that probably won't work on the first try because they have it on hand or it's cheaper (case in point, Seroquel, that was poisoning me).

When I realized my p-nurse was going to say "wait" until I was dead (tried to get a meds change for weeks) I did go in search of second opinions, but like you, either they weren't on my insurance or their next appt was in 8 weeks! My first actual appts since the start of trying to get them (#2 will be tomorrow, #3 is in September) are my last hopes before hospital will be necessary. Really guys, is that what you call help? Just because my condition doesn't respond well to the typical meds doesn't mean you give up and shove me off on the hospital. ***holes.

At least we all have each other and know we're not the only ones frustrated, to put it midly, by the system.

Cyclops out