Hi and welcome to the form!

I was dignosses 11 years ago. At first I felt as you do and its hard for others to truely understand the illness let alone what your going through or how you must feel.
It can be a long road for some. I beleave its all in how you deal. First you need to take care of you. You can't help other understand better until you do. I think you should read up on the illness and take control of the hard stuff. Everyone has a differant situation and cercomstance but with a little hard work you can reach a point in your life where things can feel normal again. Good luck

Jacqui