christmas time will never be the same for me or my family... especially my aunt and uncle, because they had a baby girl called Anne around holloween, about a week or two ago she was diagnosed with a disease known as severe Aicardi syndrome, meaning the bridge connecting the top two ventricals of the brain didnt form, the lesions on the retinas in her eyes didnt form, it caused fits, called infantile spasms, and some skeletal malformations.

its been a very hard month for us all, but then at 11:30 am she passed away. every 25th if december is the date that we wont celebrate christmas anymore, its the date that a baby daughter, cousin and niece and granddaughter will be remembered.

the last time i seen my uncle cry was in 2005 at my grandads funeral, and my brother was really shaken at the site of him in tears, he was up before me, and i i couldnt even force myself to go up to his house.
but its better she went on.

she had to live with a oxygen mask, and was being monitered constantly. we dont know if she was even in pain, but its better this way. its better than her growing up taking fits, and being blind, and in pain. its better that she didnt have to live.

i just needed to say this but i couldnt tell my friend and ruin her christmas too.