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KathyM · Mar 18, 2010, 05:19 PM

I ain't no Poobah - I'm just chatty. Besides, only my favorite cousin is allowed to call me "poo."

Speaking of chatty poo.......

I agree my husband deserves sainthood, but we have our moments. We love with passion and we fight with passion. It's inevitable when our "stars" collide. There will be times when he comes home at his wits end after a horrible day.

I'm completely isolated now because my friends have all abandoned me. My online friends have abandoned me to Facebook. On sunny days, I have to keep the blinds closed. If I can't find any food to eat, I have to wait until he comes home from work - sometimes it's very late because a client and his boss will demand he stay to fix their phones.

When he does the laundry, I'm a nervous wreck because I'm afraid someone will steal our clothes and I only have one set of sheets left. When I'm a nervous wreck, I become childlike - by the time he comes home, I'm even worse.

Other times, he'll come home at his wit's end - but I'll be really happy to finally have some company. I'll follow him around chatting all the while. I know it's irritating because at one time we had an alcoholic friend stay with us. This friend would be waiting for me in the driveway, follow me into the house, and stand outside my bathroom door talking gibberish. Fortunately, he didn't stay long with us.

Neither one of us are saints. He'll occasionally call me the "C" word, but he also knows that's an invitation for a serious discussion - no holes barred, with the exception of physical abuse. Over the years we have grown to know each other more, and our love has grown stronger.

I know what you're saying about confiding in your friend and the fear of judgment. My illness causes me to bruise easily from the slightest bump. I also develop amyloid lesions that look like deep bruises - I can tell the difference because when I press down on it I feel nothing. The lesions also come in the form of huge blood blisters on my hands. They accidentally pop sometimes when I'm trying to get dressed or brush my hair - I'll get blood on my clothing, hair, and sometime when I touch my face

I've had neighbors confront my husband on my bruised/bloody condition. It really ticks me off because they should know better - especially the ones who knew my mother who had the same illness. Those bloody lesions were all over her shoulders, arms and legs.

I also understand your wife's mistrust. I brought my husband to a support group meeting for people with amyloidosis. I was thrilled to finally give him a place to feel comfortable around "supportive friends." The woman who developed the meetings did so at my request.

We sat down at the table and she came running over to us. I was thrilled to introduce her to my husband, my saint, my Prince Charming. I introduced her to my husband and recognized that look in her eyes - all she saw was a dirty Mexican. Instead of saying "It's nice to meet you," she looked at both of us and said "Do you think it will last?"

WTH was she talking about - our marriage or my life???

We didn't even know how to respond to that question and were furious, but we sat through the entire meeting. We listened to everyone else talk about how exciting it was to be together surrounded by so much love and support.

Okay - I'm going to stop venting in your thread. This thread is YOUR rant, not mine.