Staying on top of assistance and insurance to cover treatment and meds can be a full-time job in an of itself. I have wanted to hide from it too many times; it can be overwhelming.
From your description, you are staying on top of it and the choices despite not being ones you'd like. You should give yourself lots of credit for that. It's not easy but you are.
Wishing you well as you make these decisions and hopes for no red tape.