My father had CMT. I can only relate to what you're experiencing as someone who witnessed what CMT can do. My father never talked about his condition, never said anything to the rest of us about what he was going through, but we could all see the pain he was going through. His father had a different form of Muscular Dystrophy, I don't know what type, just that it killed him before I was born. I watched the disease slowly cripple my father. I hate myself for some of the things I used to think about my father. We didn't have the best relationship, and uh... I forget what I wanted to say in this post, originally. If you need someone to talk to, Gypsymama, I'll be glad to lend an ear.