I don't do well with labels either. In fact, my pdoc and I both know this, so if he can, he avoids giving me a label to obsess about. It wasn't until last Oct. when I finally tried (so far unsuccessfully) to apply for disability ins that he finally told me what he has me diagnosed as having. I don't necessarily define myself by my labels, but I end up reading and reading and reading about them. If your pdoc does change your labels, is this something you have to know? Maybe you could ask him to not share that, and try just being "label-less" for a little while? Good luck.