A short history:

I was diagnosed with a form of serotonin syndrome when I was 16 after being hospitalized with the symptoms of rapid speech, stuttering, confusion, rapid eye movement, and twitching. My father had found me asleep on the floor (I was so tired I couldn't make it anywhere else) and once I was up and moving the symptoms began. I was sent to a neurologist because the after effects were still stuttering and double vision. He diagnosed the problem as serotonin syndrome.

Now, I have heard doctors argue again and again that my condition is not serotonin so I am here to try to get some insight. I have been hospitalized five times for taking drugs that increase my serotonin, and finally after visiting another specialist in Colorado I have figures out what I can and cannot take. Every once in awhile I'll slip up and take something that increases it slightly, and a few symptoms flare up, but I have been directed to take Benadryl (sp?) and sleep when these symptoms appear and most of the time it helps.

I have read up on serotonin syndrome, and it doesn't seem like my case is what is typical of it. I have seen two neurologists about this, and they both claim that it is serotonin syndrome. Does this sound right to all of you? Also, are there any studies going on currently about such issues? Is there anywhere I could look or anybody I could contact about participating in any studies? Its frustrating being only able to take ibuprofen for everything, not to mention the frustration of being hospitalized again and again (I'm only 20 and in college, I had to take off a whole semester last time I was in the hospital!)

Thank you so much for any insight or help.