You are not alone! I have mini or major anxiety attack at even the most routine of appointments.
The result, creates a strong sense of failure as I say to myself "Why did't I ask this that or the other...?"

Having the freedom to focus on getting to the appointment without the added stress of trying to remember what to to bring up for discussion is much less tiring and even can makes the issues seem less difficult during the appointment.

Between appointments I write the questions as they come up, and bring my folder to the appointment. Keeping all the information including articles in one place, and reviewing notes from previous appointments helps to see progress.

Bringing someone else is very useful.
One time the Dr. was not getting into the detailed answers that I as an information seeker require for comfort and my friend spoke up and said in a most substantial voice " I have known Gently1 for a long time and she is not morbid." Then the answers started coming.

My folder helps with the waiting as I know that I can get on with what I would normally do, as I am as prepared as I can be and the then all I have to do is show up! Limbo is not always a bad place to be! Celebrate that you are ready.