Daily narcotics for pain. Called PCP, she said call neurosurgeon, said call orthopedist; said do PT; Pt said can't do more- it isn't helping, call orthopedist- scheduled me an appointment for tomorrow, also said call PCP- anyone feel like they are a gerbil on a wheel? Going and going and not getting anywhere!
Diagnosis of FM by more than 3 doctors- OK I have FM; Herniated cervical discs- clearly evident on MRI- surgery to correct- had been having pain, tenderness, weakness and swelling on right side of body along with migrane headaches daily for 2 years- once post-op pain was gone ( about a week !) no more rightsided issues, no more headache. 2 months post op started PT to get my muscles back where they should be- doing great, month later wake up with Left arm in pain; 6 weeks of PT, back on narcotics, now have a TENS unit and able to get off the narcotics- yet pain has not decreased, if anything increased!
Went to eye doctor because I had totally red white part of eye- asummed allergies that caused infection- 6 weeks later, three different eye drops- STILL not cleared up! I despise wearing glasses- I have been wearing contacts since I was a teen. Connected??
Watching mystery diagnosis- I want to find the doc that links all my symptoms and says this is how we treat!
Making matters worse is that I haven't been able to keep up the house, hubby leaves stuff for me to deal with- tripped over a container the other day- yup, fell on my rear- but I caught myself before the bum hit- my left arm ( the bad one ) broke my fall, I was close to the back door- so my head ended up against that- pushing my still recovering neck too far to one side. I have given up on ER doctors so I just encased myself in ice for the day and went the ring on which doctor would see me.
Just dealing with the pain is enough- I cry because I can't clean my home ( OCD anyone?); Yet I am also dealing with being our own lawyer for bankruptcy ( fertility treatments are expensive- went on disability 1 month after stopping); I am also our lawyer for the custody battle with my sister to get my son back. I studied medicine in college ( although not enough to Dx myself); now i am learning "legal-eeze".
I am trying to hold it together- see my therapist weekly ( yeah insurance pays for it!), but I have days when I just want to curl up in bed and have blanket therapy ( cover head and pretend the world doesn't exsit ), but I am up early every morning and out of bed because once the muscle relaxers wear off the pain shoots up! Even taking medication for the pain doesn't help- i can't go back to sleep.
I fully admit I am an addict- ALL my doctors know this- yet when I called that I had fallen and had an increase in pain- 3(THREE) doctors offered me more narcotic pain killers! What part of addict did they not get?? I had to detox Sept 08 from narcotics to start a different med for the headaches- I don't want to go through that again!
I am now being asked about the outcome of my surgery and if there are limits to what I can do by the Guardian ad litem so she can recommend to the court if we should get our son back- I can't lie- the only limitation set forth from the docs is no lifting more than a gallon of milk and no working above my head with both arms ( heck i can't even french braid my hair since the surgery!). Seeing as my son is 7 and 3/4 ( the 3/4 is important at this age) I don't think these limits will interfere with caring for him- he isn't a toddler that has to be picked up all the time, he can get in/out of the car himself and get all buckled in ( once my husband re-installs the booster). If anything he will be able to help me. My only concern is him seeing me for an entire day. right now I can hide my pain for our 3-5 hour visits, but daybreak to bedtime I won't be able to hide the pain. He is a very empathetic child- anyone know any good books on how to talk to your kids about pain?? I can talk easily about drugs but how to ease his concern about my pain??
I have rambled long enough and the pain is getting worse- time to go electrocute myself ( using my TENS to stop the pain). I can't even just leave it on all the time because my skin breaks down too easily.
Gentle hugs to all!

