I think if you have been diagnosed with hyper-mobile joints, the doctor would have considered Ehlers-Danlos. Do you have the stretchy skin? It's very "odd" looking, one can pinch the skin and pull it "up" several inches like it's plastic. There appear to be four types of the syndrome but they all have other major body defects so I think a doctor would know if you were suspected of having it?

Here, maybe this will help answer some of your questions: http://www.mayoclinic.com/health/ehl...ndrome/DS00706