Hi Elana,

Thanks for your reply, feeling a bit better today.
I live in New Zealand. My daughter's been tested for everything they can think of, so hopefully Lyme Disease was one of them. The only thing that has come back positive is her ANA which indicates an auto-immune thing going on, and her inflammatory markers are up and down. Going for a Bone scan soon, but haven't got a date yet. They are querying juvenile arthritis, but she doesn't quite fit the criteria. Bone scan is more to rule out a focus of infection that they might have missed. At least I know they are still looking for a cause, but if its Juvenile arthritis its not going to be an easy ride, although there are lots of treatment options. It just feels like being given a diagnosis will make it easier to deal with. My hubby was talking about cutting work hours so it will be easier to look after her. I've already cut down a day, and my boss was sympathetic at the time but now getting stressed at fitting it into the days I do work!
My family live in the UK, and my parents are coming over for a long stay at the end of the year, just having them here to help out will hopefully make a huge difference, although by then Heather will hopefully be feeling better.

Sarah