I've lived with a seizure disorder for the last 8 years. Like yourself I had to go through intensive testing to finally find out my seizures were caused by a lesion on my brain. I've never had a brain injury so the doctor told me that as our body changes that through time the lesion began to disrupt my brain activity. I'm 28 years old now and things are still difficult to cope with. I would recommend you to talk to people from the Epilepsy Foundation. They also have forum that people can get in touch with one another and provide support in dealing with living with epilepsy. I wish you the best of luck in searching for all the answers for yourself. Keep a open communication with your doctors and ask any and all questions and do your own research.

http://www.epilepsyfoundation.org/