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Old Sep 08, 2010, 05:49 PM
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shezbut shezbut is offline
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Member Since: Feb 2009
Location: Rochester, MN
Posts: 12,565
((((hugs)))) to you Jenn1fer82!!

That does suck, I am sorry

Yep, you're going to have to call your doctor and tell him what's been happening. I'd imagine he's going to want to check blood levels of the medication and make some changes. Don't know what med you're on, but some meds do work better than others for most of us.

Unfortunately, there are people that are medication treatment-resistant. That's when doctors begin looking into VNS (vagus nerve stimulation) or partial lobectomy. If you are treatment-resistent, I highly recommend going to an Epilepsy Treatment Center. When I lived in Ca, Stanford was highly regarded for their treatment of E. There is also UCSF and UCLA. They're good too, but not as good (according to my neuro anyway). Now I live in MN, so I go to Mayo Clinic. Epileptologists at these centers are neurologists who then became "Fellows" in epilepsy for 2 or 3 more years. Then, they can anywhere and practice simply in treatment and care for people with E.

Gentle hugs to you ~ I'm sorry it was such a bad day
Shez