No, I was misunderstood. I am not off disability - I am still using Medi-Medi. What I am off is SSI - supplemental security income. THAT was the killer. It just controlled every little thing. Medicare-Disability is fine and not terribly restrictive but Medicaid is and just a necessary evil at this point in my life. I'll ALWAYS be ill - that's just a fact of my life. I just hope I can play my cards right so I get into a situation without compromising my health so that I can eventually get off of Medicaid.

I think what is most aggravating is that I have an invisible illness that is from birth and that the folks who work in these social services just don't quite get it...so explaining myself over & over again is tiresome.