lynn09 says (in blue):

The SSA has been waiting since 1999 for my doctors to give my immune-system disorder a name so they can assign it a code so it can be listed in my primary disability diagnosis. They have also been waiting for my doctors to evaluate my other chronic medical conditions to determine to what extent they contribute to my disability, as well. THIS is what my siblings have worked so hard to prevent. They do NOT want my medical conditions evaluated, diagnosed, or treated - they do NOT want my disabling medical conditions substantiated because they want to convince everyone that all of these conditions that my doctors have treated throughout my life and all of the surgeries I have had over the decades are all "delusions" and "hallucinations" asserting that I have been fooling ALL of my doctors my entire life, and somehow causing them to see in lab results and on x-rays, MRIs, etc., things that really didn't exist - even tricking them into doing surgeries on me for non-existent conditions!!!!!!

Lynn, here's the web site for Immune System Disorders (SSA Disability Evaluation Section):

http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm

for other physical disorders, go to:
http://www.socialsecurity.gov/disabi...ltListings.htm

and choose the correct one.

DISCLAIMER (meaning i am really searching my brain to remember this one!): there is also something called the ICD-9 which are diagnostic codes for all illnesses as well. the above are the SSA's codes they use in determining disability. the ICD-9 codes are the one's used by medical practitioners. they also will be on the doctor's printout after they tested you originally, they HAVE to enter a code to be reimbursed by the insurance company. you can request a printout of your diagnoses from your doctor with the codes on it. it's not your medical record, is usually a 1-page document (if they keep their patient files in a computer?).
http://www.ehow.com/about_6586074_de...d_9-code_.html

What I lost as a result of my siblings' illegal interference in my healthcare was approximately $90,000 (just under $500/month after I started receiving SSD benefits) in long-term disability insurance benefits through my employer's carrier. In fact, I lost those benefits twice - when the carrier illegally terminated them in 2001, and again in 2006 when I was dropped from the class-action suit that had been brought against that carrier for illegally terminating my and so many other eligble beneficiaries' benefits. I informed my new doctors here of the lawsuit, but they never informed me that my family members were illegally directing and controlling my healthcare without my knowledge and consent - nor did my doctors inform me that they deliberately made certain that I lost out on recouping any portion of those benefits from the settlement because my family members had convinced them that I was a "demented, delusional lunatic," "pathological liar," "criminal," and "drug addict." That $90K is lost to me forever - there is no legal recourse available to me. This left me with only SSD as income - just a little over $1,000 per month at the time - just over the income limits to qualify for Medicaid, food stamps, assistance with utilities, housing, or anything else; so, I had to pay full price for everything. My brother's solution for my dire financial situation (that he and my sister deliberately created) was, "Put on some makeup, dye your hair, find someone to date, and get a job!" The other $30K that I lost later on was because I had to take early distribution of my retirement benefits in order to survive forcing me to forfeit about 1/2 of that fund.

As far as the lawsuit, all lawyers are online now. Could you go to their website and write the lawyers in the class action suit and at least challenge why your were dropped from it? And also explain your family's interference with your medical care and being instrumental in trying to defame you and preventing you from receiving these benefits? Those doctor's also need to be reported to the Medical Board. Oh this is so awful Lynn.

As for my doctors here allowing my siblings to interfere in my healthcare and giving them access to my confidential personal and medical information - I NEVER signed any authorization or release of any kind whatsoever that would permit my doctors and/or their staff members to do such a thing! When I first moved back here from up north, I wrote an emergency contact designation letter TO MY APARTMENT MANAGEMENT that authorized my apartment management to give my siblings access to my apartment, pets, vehicle, and personal property ONLY IN THE EVENT THAT I WAS HOSPITALIZED, UNCONSCIOUS, AND COMPLETELY INCAPACITATED. At no time since I have lived here have those 3 criteria been fulfilled; therefore, those authorizations were NEVER legally executable. Anyway, as soon as I learned that my brother had lied to me to TRICK ME into moving back here so he could coerce me into signing my Power of Attorney over to him in exchange for access to medical care, I revoked his authorization (2002); and as soon as I found out that my sister had been a part of this "crazy-making" scheme all along, I revoked her's, as well.

did you go to this site Lynn?
http://www.caringinfo.org/userfiles/File/Texas.pdf
when you have a durable power of attorney and living will in place, they can't touch you. Those forms are very specific and don't leave any room for misinterpretation or misrepresentation. A copy goes to your doctor as well. I even keep one in my car in case i am incapacitated in a wreck. I don't want my family anywhere near me except sis. The others are like circling vultures waiting to fly in to pick over the remains. They also appoint my neighbor as my guardian, beneficiary, and power of attorney. And, separate document, my Last Will and Testament pretty much says who doesn't get what and why not.


They have NEVER been authorized to participate in my healthcare in any way whatsoever, nor to have access to my confidential personal and medical information!!!

These healthcare providers and their staff members here allowed my abusive family members to manipulate them into becoming abusers themselves - and, now, the only way that they can protect their reputations and careers is by defaming and discrediting me and destroying my life - the very thing that my abusers wanted them to do. It's perfectly obvious to me, too, that the rest of the doctors in the local medical community intend to protect the reputations and careers of their colleagues at my expense, as well. The thing that hurts the worst is that all of the pain and damage that my family members and these healthcare providers have inflicted on me is deliberate, intentional, pre-meditated - none of them ever intended to do me anything but harm.

Personally? i would call everyone of the danm doctors and demand proof in writing why they thought they had a legal right to allow your family privy to your personal information. ohhhh i would be livid!!! You can also write to the State Medical Board that oversees the licenses of these so-called practitioners and report them. HIPAA laws are very strict Lynn and it's against the law to violate your confidentiality. At work, at every staff meeting, we are reminded: don't discuss your clients' diagnoses, you can be sued. They tell us that over and over.

Thanks for your input, links, prayers, and support, DancingAlone - I need all the help I can get if I'm going to survive this. lynn09

i'm here my friend. i wish i was a lawyer, i'd help you in a heartbeat. but am holding your hand, saying prayers. take care Lynn.