Hi everyone,
I was diagnosed CFS by a Neuro last month. Have since lost my physio who says that I am not in a mental state to be undertakng physio and went to call my GP as I left as she said she wanted to talk to him personally as she wanted to make sure he was aware of the mental health issues. Took me 3 weeks of panic attacks and generally driving myself insane before I made an appt. I saw the GP on Thursday and explained that I was unsure of the CFS diagnosis as I am not fatigued other than lack of sleep and muscle twitching and I don't suffer fatigue or pain after activity probably because I do nothing, granted. Anyway that aside I was concerned more about my mental health as my moods are extremely severe and eratic, I talk to myself most of the time to the point of arguing and bringing myself to tears over the things that are said, I get flights of ideas that have led to major disruption in my life including a bankruptcy 6 years ago. All in all I am a completely different person to who I was 6 years ago. I can recognise traits of "weirdness", from way back and now I seem to be permanently in that place>
My GP "advised" me that, I had seen 6 Pdocs who had yet to provide a diagnosis and 3 therapists who all claimed that they did not have the resources to treat me as it would call for a consultant Pdoc and none was available! Now my GP says that they have all wrote to him stating that I am combative and hard to treat and then looked at me and said "I can see what they are saying as you get very anxious and guarded when I see you!", what the hell!!!! He then said that he wanted to start me on Imapramine (spelling?), as he needed to talk to the Neuro regarding her recomendations for drug treatment as he was unhappy with it. Then he said I would be on them for a month and if I showed no improvement he would refer me to the Neuropsychiatrist,(hospital based), and switch to the Neuro meds providing he had a reply. He implied that the Neuropdoc was the last chance kind of thing because he works only in the hospital and specialises in CFS patients. He sat back with a little smirk on his face and told me I was repeating myself and that it was only a 10 min appt!
I feel completely discarded. I am totally bewildered as to what to think! I know in my heart there is something other than CFS happening and I'm not imagining it. Am i right to feel this confused, should I not just be grateful that after 5 horendous years, I finally have an actual diagnosis?
I truly think the Neuro was wrong and feel I should have been given an MRI to exclude lessions but I didn't say because I felt invalidated during the appt and I can't bring it up with GP as he is already exasperated with me. On top of that I got my ESA renewal to fill out and went into panic mode about that. I "feel", I am Bipolar but I'm now afraid to say anything because of the reactions I have been getting from the various medics. I know only a Pdoc can diagnose this and wonder how this could be achieved as they say I am untreatable and never listen anyway WTF!!!!!!
I can't accept this and can't seem to get them to listen! What do I do now?
Any ideas?
Thanks 123