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Old Nov 30, 2010, 03:57 PM
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yellowted yellowted is offline
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Member Since: Nov 2010
Location: UK
Posts: 2,004
please can anyone enlighten me as to how i can get out of this crack.
I live in the Uk and was diagnosed with dissociative motor disorder 19 months ago, from what i have read it usually gets better in a matter of a few months, if it hasn't as in my case it usually lasts for many years to come and should be treated as if it were as a result of the 'physical' equal.
yet i am unable to get help from adult services for a referral for a grant to adapt my home, (i live alone in my own house, loo and bath are upstairs as is my bed, kitchen is downstairs. I am unable to bear weight through my legs so use a wheelchair downstairs and outside, I have been given half a ramp, yes half a ramp to allow me to get out if there was a fire, a bath lift and a wheelchair which is too small for me but is the largest which will fit through my kitchen door!)Adult services refuse to take my case on because dissociative motor disorder is classed as a mental haelth one, but my mental health team will not apply for the grant on the grounds that dissociative motor disorder usually gets better in a few months and although my condition is still deteriorating after 19 months they still say it could possiblyget better but no one can guarantee if it will ever or how long it could take! seems to me there is too much uncertainty to be sure ! but on those grounds it could possibly never improve and it seems if that is the case i will be left shuffling downstairs like a one yearold, pulling myself up by my hands and shuffling around upstairs like a baby for the indefinite future! All because of a diagnosis which has no clear guidelines of treatment or timescales. I have wrote to my MP most months for over a year keeping him up to date on all the circles i have 'jumped through' I have talked to the head of adult services and an advocate who couldn't help me. I am totally at a loss as to how i can make my home safe and suitable for me for however long this takes. the only option i seem to have is to sell my home which is my late partners family home since 1929 when it was built! if anyone knows of any charities or things i can try to get funding to adapt my home i would be very grateful if these please xx