wow i wish mine was so quick, the co-ordination in my hands varies all the time but they constantly hurt, more so of an evening, my legs do not move independantly at all ever and hurt most of the time but i do not notice it as much if i keep myself distracted! my core muscles don't work either so i can't sit up unsupported at all!(this is the hardest bit to deal with because i have to really plan how i am going to do every move i make so as not to keel over like a baby!) I spend most of my day strapped into my wheelchair or scooter, and the rest of the time i lay in bed emailing or trying to find others going through the same thing! I have to shuffle on my bum everytime i need the loo as the landing is too narrow for a wheelchair and i pull myself up each stair by pulling on the hand rail and pushing off the stair at the same time all because I do not 'fit' the criteria to get my home adapted (i own it!!)
How does your care team treat you? mine have no clue what to do to treat me! they are trying to dump me in a residential neuropsychiatry rehab unit for 6 months!!!