I was recently in the hospital too getting the eeg test done. The thing about that is, sometimes it can take awhile for a seizure to show up on it. I was there for 16 days before they saw any seizure activity. I know people who have had to stay for a month or two to get some answers.

I'd inquire about going back and maybe staying a bit longer to get some answers. Hopefully your doctors will start taking it more seriously!

Also by getting worse when off your seizure meds, how do you mean? I know when they weaned me off mine while I was in the hospital (to try to induce a seizure they make you go off your meds), I fell into a deep depression because my seizure med is also used as a mood stabilizer for my depression.

Hope you get some answers soon!