yes i have on a voluntary basis, i have a dx of dissociative motor disorder for 20 months but this dx apparently usually improves in a few months so is not classed as long term substantial though if it lasts more than a year it is likely to be with you for many years to come. but after 20 months it is still being classed as not long term substantial which means adult services will not take me on or apply for a grant to adapt my home (this condition has left me unable to walk, with poor core stability, poor h/e co-ordination, i tire very quickly, it takes over 30 minutes for me to pull myself upstairs to the toilet, bath or bed! I have had to knock out a door frame myself to allow my new wheelchair to pass to the kitchen, I had to build my own ramp last year as i was given a wheel chair but no means of getting it out of the house(i have since been given half a ramp..yes you did read correctly i did say half a ramp!!!) all i want is to be able to move easily and safely around my home so i have energy left to help others and have a life myself. I strongly believe that long term substantial need should be identified on a person by person level not solely by a dx as 100 people with the same dx all may have a different severity/set of symptoms and will all deal with their symptoms in a way personal to them! it just seems so unfair that a friend who can walk with a different dx had had her bathroom adapted to a wet room yet i can't even get up to my loo in less than half an hour or get into my bathroom in my wheelchair!
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