Would insurance cover home health care, Squiggle? Or a community agency of some kind?
I'm thinking it would be a good idea to have someone come in and learn how to care for him overnight. Not only so you get the respite that you need, but so you do have the experience of it should you ever absolutely need to have someone come in: for example, if you became sick or needed to be overnight in the hospital or needed to go out of town for some reason. He has needs yes, but you do too and his do not trump yours.