You may also want to work on a letter to your local congressman (I work better when I am stressed........but not overwhelmed. I work with an agency that deals with clients w/ (MR/DD). Our clients have been affected by the spend down too........Where do they think these people will get all this $$$ and still survive......!!!!! Anyway, we have had a lot of help by going through our congressman as an advocate on our clients behalf. I also know of a family whose son is bipolar and recieved such a letter......(it sounds like your situation), they too contacted their congressman and everything was settled quickly and to their son's benefit. Good luck and take care!