View Single Post
 
Old Jan 20, 2011, 07:37 PM
yellowted's Avatar
yellowted yellowted is offline
Magnate
 
Member Since: Nov 2010
Location: UK
Posts: 2,004
i would love to but do not feel i can help others when i am not not being helped myself with my dx, i have dissociative motor disorder which is unheard of in most places and in most others is lumped with other dissociative disorders under the umbrella of conversion disorder which are completely different so have completely different problems associated with them, my problems are mainly 'physical' ones which aparently aren't physical but mental manifestations brought on by the so called un expressed emotions of my past so i do not qualify for help from adult services who deal with physical problems i am being dealt with under mental health who have no experience of my dx or the physical problems i have so they are not helping me at all with the things which are causing me the greatest stress, i do not have alters, fugue,or any other symptoms of dissociation and have yet to find another person with any experience of my dx anywhere in the world so have no one with whom to compare or discuss my problems with who understands why i can't get my house adapted, have only been given half a ramp and a bath lift but no way of getting upstairs to it or to my toilet!! who understands my disgust at being told to empty my comode down my kitchen sink.....i am living in worse conditions than most did during the war (second world war) all because my dx is one which usually gets better within a few months, yet i was dxd 2 years ago and my condition is still deteriorating! Until some one has the gumption to say it has been with me too long to improve i am stuck in this situation of experiencing all the difficulties which any paraplegic faces but without the adaptions needed to support me. on those grounds i have to use my little energy to look after myself and do my own fighting! sorry if this sounds selfish but i have to look after me as i have no family and no one else is here to support me (ok i have a PA for a few hours a week, but my care team think i shouldn't even have that)