I have physical symptoms but a m/h dx
i was given a m/h dx before any physical dx s were ruiled out
i was not depressed but given anti depressants
i was given a wheelchair but no way of getting it out of the house
i was given another but no means of getting into my kitchen in it
i was told my dx was changing to anxiety but it wasn't
i was sent to anxiety management group when i was frustrated
i was told to take my home made ramp away because it was dangerous a year later was told it was safe and given half a ramp!
i was given a bath lift but no means of getting upstairs to use it
i was given a comode but not to use as a comode
was told i could have my house adapted then was signed off with nothing having been adapted,
i was referred for an MRI scan, 12 months later i got it (6 months after it i got the results!)
i was told my m/h team had tried everything now am being told i have not tried everything(treatment wise)
i was ordered not to get a scooter (to allow me to get out and do shopping on my own) because it was detrimental to my m/h recovery yet lived alone and could not get myself out of my home in a wheelchair!
camping taught me not to empty chemical loos down a toilet yet an OT suggested i empty a chemical loo down my kitchen sink!(i refused this one!!)
the list could go on for a very long time but you get the message, it is no wonder i feel so mixed up, with all these conflicting messages. i really hate how i feel, i do not know what to think any more, i do not know if i should be on this site or one for physical dxs, or neither, i do not know if this is all in my head or if it is real anymore i feel like a puppet dangling in a nightmare for the past two years with infinity lying ahead just dangling, not knowing, struggling on my own with no one who really understands or anyone to help me fight for my needs. i hate it, i hate this life and all because i do not fit a criteria because of my dx, because people are making assumptions about things they know nothing about, and are not concerned about me as a person, a human being with rights to live safely in my home and to be treated fairly because there is no fair way to compare with for this stupid unknown dx. i give in, can't keep being ok when everything surounding me is so not right.