This sounds like a situation wherein it's best to interest yourself in what kinds of treatments are helping you, not so much in what the diagnosis is. I'm usually a firm believer in getting a solid dx before treatment, so that the treatment chosen is the most likely to be effective for the condition. Maybe this is a time for you and your SW to focus on your treatment and not your diagnosis? Also, if you are in a position to get a second opinion, I'd do it.