Quote:
Originally Posted by salukigirl
Also, my TLE was described as "abnormal" by my neurologist. I don't lose consciousness. I get very lightheaded and feel deja vu sometimes but that's where the similarities stop. I then lose my vision, everything goes black, and I feel like I'm about to fall over. After my EEG it turns out that being tired is my 'trigger'. The test with the strobe lights and the breathing did nothing but when I fell asleep on the hospital bed my EEG went nuts I guess...
Since I was upped on my meds I haven't had any seizures, which has been about 2 months now  |
Hi salukigirl,
Just wanted you to know that your experience of a complex partial seizure is pretty common. They tend to start with a scary deja vu, along with a strange "pins/needles" sensation throughout the body. At that point, we become only partially conscious. We lose sight, awareness and hearing. The physical weakness tends to kick in just as we are re-gaining awareness.
I've noticed that my sight comes back gradually, the area starts out dark and slowly becomes lighter. Sound is also a gradual sense recovered, and always comes a couple of minutes after sight (for me).
Triggers do vary for different people, but
frequent triggers for all of us are: lack of sleep (HUGE trigger), stress (another BIGGIE), hyperventilation, flashing lights, physical stress. Some people are triggered by music even, but that is not a common thing.
Hope that seizure control is maintained well for you. Best wishes!