Anyone out there with EDS? I have EDS Hypermobile Type - was officially diagnosed in 2003 due to clerical error (I could have known I had it way back when I was 15 but SOMEBODY forgot to pass on their suspicions to my gp)

I suffer chronic pain that is slowly getting worse, that's only a tiny symptom of the crazy world that is EDS (look it up, we're pretty fascinating!), but that coupled with the depression, the anxiety, the constant nightmares and bad sleep...it's hell.

I'm not really asking any questions at this moment, I understand my disability pretty well (except where I'll be in a years time), just curious to know if there are other Zebras out there?