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She had the MRI today and CAT is scheduled for Monday.
I feel so stupid. When she was young I accepted the answer “light sensitivity”. I did frequently question how healthy it was for her to take Tylenol so frequently. The word “migraine” did not enter the conversation until she was in High school. Even then I accepted that as a part of life. My mother and I both suffer from these debilitating headaches.
The neurologist is going through the motions, doing the appropriate tests and things but he too said “so if you’ve had headaches this long then you’re a headache person.” Like that is some form of an answer. In this day and age there is no other answer then it is just a fact of life.
I am happy that she’s finally agreed to eliminate all other possible causes (brain tumors, seizures etc that run in our family).
Since she was 17 she has been on nine different migraine medications. She absolutely doesn’t want “more” meds, just one that will work.
The appointment wasn’t a total loss at this point. She’s been on topamax for a few years. It was pretty helpful in the beginning but loss some effectiveness. Our new family doctor informed her that she was at the top of the dosage allowed. The neurologist adjusted her dosage and said that may have been the highest the doctor felt comfortable prescribing, but she’s now taking a quarter the dose that is customary for neurologists to prescribe. He equated it with giving an adult a baby aspirin.
He also let her know that there is an in patient treatment that has the possibility of breaking the headache cycle. A series of IV’s and shots administered in the hospital. The problem is just like antidepressants, these treatments are hit and miss. What works for me, may not do a thing for you. It’s all so frustrating.
Thank you very much for your supportive words. I still feel like an idiot for overlooking such an obvious cause. We get the results of the tests next month.
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I've been married for 24 years and have four wonderful children.
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