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Feb 14, 2011, 12:49 PM
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Member Since: Jun 2007
Location: Chicago, Illinois
Posts: 5,518
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My husband usually has to cut up my food into little pieces for me because I have so much trouble due to the neuropathy. Food often dribbles/drops out of my mouth due to my paralyzed face and inability to control my mouth - in more ways than one. 
I try my best, but I SUCK at washing/ironing clothes - pipes are broken, so my husband has to take them all to the laundromat in his "spare time." I do my best to fold them and put them away when he comes home, but his clothes are so old and torn that I can't do much about it. I'm legally blind. 
My husband is SO STRESSED being my only caregiver. He rushed off to work one day, knowing he was already late for a meeting. His boss and co-workers like to make Mexican-themed fun of his raggedy clothing. When he showed up at the meeting, he had a coffee stain on his shirt (which happened while he was "racing" to work).
When he took his place at the meeting, someone said "Nice coffee stain you got there - did your WIFE pick that one out for you? Everyone ROARED with laughter. 
Yeah - real FUNNY. Why oh WHY can't we learn to use our MANNERS and ETIQUETTE?
If I'm at a restaurant with them and the amyloidosis causes my throat to "seize" while eating and I choke on my food - will THEY come to MY rescue? HELL NO - they will think it's funny/fascinating to watch me pass out face first into my food. My oh my what horrible manners I have - what a MESS. 
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