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Nola22 · Feb 14, 2011, 02:00 PM

Quote:

Originally Posted by KathyM

My husband usually has to cut up my food into little pieces for me because I have so much trouble due to the neuropathy. Food often dribbles/drops out of my mouth due to my paralyzed face and inability to control my mouth - in more ways than one.

I try my best, but I SUCK at washing/ironing clothes - pipes are broken, so my husband has to take them all to the laundromat in his "spare time." I do my best to fold them and put them away when he comes home, but his clothes are so old and torn that I can't do much about it. I'm legally blind.

My husband is SO STRESSED being my only caregiver. He rushed off to work one day, knowing he was already late for a meeting. His boss and co-workers like to make Mexican-themed fun of his raggedy clothing. When he showed up at the meeting, he had a coffee stain on his shirt (which happened while he was "racing" to work).

When he took his place at the meeting, someone said "Nice coffee stain you got there - did your WIFE pick that one out for you? Everyone ROARED with laughter.

Yeah - real FUNNY. Why oh WHY can't we learn to use our MANNERS and ETIQUETTE?

If I'm at a restaurant with them and the amyloidosis causes my throat to "seize" while eating and I choke on my food - will THEY come to MY rescue? HELL NO - they will think it's funny/fascinating to watch me pass out face first into my food. My oh my what horrible manners I have - what a MESS.

I'm sorry for everything you're facing, KathyM, and that people are so damned insensitive. I wish you and your husband all the best. He sounds like a great guy with all he does for you and endures from his coworkers. It's awful the both of you must interact with such horrible people, totally lacking in humanity and empathy. My heart goes out to you.

Sorry for taking this thread slightly off track.