Thanks for the support! I really appreciate it! I have tried some of the medications made specifically for MS patients, but none really worked. You see I have a very form of it called transverse myelitis. It is basically a one-time event that forms lesions on the spinal cord and blocks nerve impulses from reaching my legs. I do see my neurologist in a couple of weeks, so I am going to ask about maybe trying something to help me out (besides long-term use of pain-killers!) I also see my T this week (who is a psychologist as well, but not into the stress management or pain aspect). I also see my pdoc this week. I think I am going to ask for something to help me sleep at night. I am SO THANKFUL you understand the need to sleep in the afternoon! I only took a one-hour nap yesterday (had a party to go to) and I was exhausted when I got home. I still couldn't get to sleep and was until after midnight. I woke up this am about 6:30 ish (CST) and really was in too much pain to sleep, so I got myself up. I am still tired, so another nap is going to be needed today. Thanks for the great advice that is also VERY much appreciated!
quote=(JD);1715173]
Few people realize the difference when dealing with MS pain and fatigue than with other pain and fatigue, imo.
I'm sorry your T doesn't understand. I have a pain & stress management expert T (clinical psychologist still...) who fully understands that if I don't nap mid day, I become almost "over" tired to sleep at night! I must have a rest. It can frustrate me because I never know how long a nap I need or will take... and what impact it will have on the night's sleep...because, yes too long of a nap (like hours!) does change the night's sleep.
Have you started on any of the MS medications yet? There are plenty to try, for your type of MS...and seems like more each year. (So many medications being used off-label for others in pain originated from MS pain and fatigue research!)
There are a few of us here with MS... I don't officially have MS since I only have one lesion (not "multiple" as in Multiple Sclerosis.) And my lesion is from an injury accident... but it causes all the same symptoms of MS, neurologically as a vertebrae chews into my spinal cord (where it's caused the lesion.)
It's so hard to find what's right for you to begin with, and then to have so many telling you what the norm might be 
without considering your own issues...that makes it so much harder I think.
Try not to beat yourself up over what your body needs. It is what it is and you aren't causing it or at fault...and taking care of yourself...doing what you know works for you is what you have to do. [/quote]