I'm in Canada, so our situations are probably closer.

I hope there is some option for extra support for your family. I hear you describing your need. I hope there's somebody in the NHS who can guide that support towards you. The squeaky wheel gets the grease. Can you go with, to the pdoc appointment? Can you write out some key points to be ready to raise them with the pdoc? So you don't forget anything important?

Lar