(((Danno))) I am sad to hear this. I do not have any familial connection but an acquaintance of mine was dx'd with it and then told to wait for his next doctor's appointment 6 months later! Of course, if it had been ALS, he very well could have died prior to treatment. (It wasn't ALS>)

Take each day as it goes Danno. Is she getting any real treatment? Sometimes the elderly aren't aggressively treated...

...I can misspeak like the best of us