Hello Danno
I am so sorry about your Mom. I would have a talk with her doctor for information as well.
I did some searching for you on Lou Gherig's(ALS)..... here are some links for you to do some searching on and hopefully to answer some questions or to have a support group for you as well....
http://www.lougehrigsdisease.net/
<A target="_blank" HREF=http://www.mdausa.org/publications/fa-als.html>http://www.mdausa.org/publications/fa-als.html</A>
Regarding medication.....Although ALS research is proceeding at an unprecedented pace, only one medication has been found to be somewhat effective against the disease and is approved by the U.S. Food and Drug Administration as an ALS treatment. That medication, riluzole (brand name Rilutek), has a modest effect in prolonging survival. Several other medications are now in clinical trials.
You may also want to post in the caregiver section here too.
Please take care of yourself too....this is a hard and difficult time for you. {{{{{{{{{{{{Danno}}}}}}}}}}}

Heather