I'm trying to get my son to see a neurologist and his dr has ordered it per the er's request but the referal part of the doctors office isnt doing their job ive been fighting with them to get it done since jan. 2011.
Cause its so genetic in me and my family that any kids i have stand a 95% chance that they will be born with it.
My step kids are one boy and one girl and when they saw their brother have a seizure they finally understood why i am so careful what their brother is around. I thought they understood but the next day I caught them pretending they were having seizures because they thought it was fun. So then we had to explain it to them again. I won't give up I'm trying very hard. I just feel exasperated at times and could use advice when it comes to kids.
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Originally Posted by shezbut
((scooter62487))
Sorry, but I am a little confused. What makes you think that the baby you're pregnant with will also have epilepsy?
I am sorry to hear that your 10-month old baby is having seizures. There aren't that many medications approved for children, but there are several. The ketogenic diet is a possibility as your son begins to switch to a completely solid food diet, but that's a good year or two away from now.
Have you taken your son to see a pediatric epileptologist? If not, I'd highly recommend that you look into that avenue. They are pediatric neurologists that specialized in the treatment of epilepsy, and therefore have extensive knowledge of available treatments and possible side effects. I have epilepsy myself, so I do have extensive knowledge and sympathy for those also facing this disorder.
http://www.epilepsy.com
http://www.epilepsyfoundation.com
Regarding your husband's ex-wife causing the 2 girls to misbehave, I'd recommend that you sit the girls down after you educate yourselves about epilepsy. You will then be able to answer any Q's and concerns that they have openly. There are a lot of misconconceptions out there about E. This is an opportunity for you to help your son by erasing some of the myths that those in his life believe. Grab a hold of that opportunity and keep moving on. You can do it!
Btw, you're welcome to PM me if you'd like to talk or have Q's. Best wishes to you and your growing family! |