I'm so sorry you are struggling to figure out what's going on with the Drs. Hopefully the appt today will help.
When you say you have "episodes" or get "sick," I don't understand what that means. Do you mean losing time or sitting in the back of your head or something?
I am in the back of my head most of the time even when I am present, always in the distance. But there are times I feel myself get further back and it gets dark. Then I find myself somewhere else. Other times I just end up somewhere else doing something else but don't remember going through the "tunnel" in my head. When I am present, although in the back of my head, I am still aware of what I am doing. But when I back into the tunnel or just end up someplace else, I have no idea what happened while I was gone.
I remember being diagnosed. I fought it and denied it for well over 3 years. Even though it explained things, I couldn't deal with it. I do have to say that now that I've finally accepted, it's a little easier to deal with.
Thank you for sharing your experiences. I hope you will get the help you need and deserve.

