hi sanda, sorry things are tough for you, i can totally connect with this as although i have a dx of dissociative motor disorder, my care team are questioning it , they all agree my symptoms are not typical or reacting to treatment as they thought i should, but do not know what else to call my symptoms, and so have virtually given up on treating me yet are unwilling to help me get my home adapted to my needs as a wheelchair bound person caused by my symptoms! like you i am the expert on me and although they admit they do not know what to do they are unwilling to listen to what i say needs doing!