The long and short of it is that they don't know what is wrong as the MRI scans, CT scans, EEGs, spinal taps, blood tests, interviews with psychiatrists and psychologists etc have yielded no diagnosis except "You're a very unusual case, haven't seen anything like it before. We'll get your GP to keep monitoring you."

In the meantime I'm not able to plan more than a few hours ahead as I don't know when I will
next get a migraine and/or whatever else I get which causes me so much confusion and memory loss.

The family is stressed out not knowing what I might do next. Waking up in the middle of the night to find me missing is, I imagine, very stressful. I'm sure the police would prefer to make better use of their time than scouring the streets of the town and nearby country roads looking for me.

I've been admitted to hospital 4 times so far this year because passers-by, police etc have been so concerned about my condition (staggering bumping into things, disorientated, and incoherent) that they have called an ambulance.

I get the feeling that they have placed me in the "too hard" basket as they don't have the time and resources to do anything more. My GP told me quite bluntly that medicine doesn't have all the answers and I'll have to learn to cope with it.

That's why I'm here - looking for any tips, clues, ideas and suggestions I can use to arm myself with the next time I see a medical professional.