Quote:
Originally Posted by pīwakawaka
The long and short of it is that they don't know what is wrong as the MRI scans, CT scans, EEGs, spinal taps, blood tests, interviews with psychiatrists and psychologists etc have yielded no diagnosis except "You're a very unusual case, haven't seen anything like it before. We'll get your GP to keep monitoring you."
In the meantime I'm not able to plan more than a few hours ahead as I don't know when I will
next get a migraine and/or whatever else I get which causes me so much confusion and memory loss.
The family is stressed out not knowing what I might do next. Waking up in the middle of the night to find me missing is, I imagine, very stressful. I'm sure the police would prefer to make better use of their time than scouring the streets of the town and nearby country roads looking for me.
I've been admitted to hospital 4 times so far this year because passers-by, police etc have been so concerned about my condition (staggering bumping into things, disorientated, and incoherent) that they have called an ambulance.
I get the feeling that they have placed me in the "too hard" basket as they don't have the time and resources to do anything more. My GP told me quite bluntly that medicine doesn't have all the answers and I'll have to learn to cope with it.
That's why I'm here - looking for any tips, clues, ideas and suggestions I can use to arm myself with the next time I see a medical professional.
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Unfortunately you can read up on every medical and mental health problem there is and still not have your answers because so many mental and medical problems share the same symptoms.
the only way to really narrow the field down is for you to keep some sort of documentation of your problems and symptoms. maybe in the form of a journal, then eventually as each medical and mental health problem gets ruled out you will be that much closer to having a diagnosis.
one thing you might be aware of is that there are medical and mental problems that can seem to disappear and come back again when you are under stress and there are medical problems and mental problems that show their self in physical problems but tests results show nothing.
for example conversion disorder is one such mental disorder where mental disorder symptoms come out as physical ways and mental ways but does not show up on any tests. so does fibramyalgia in rare cases.
it may take a while before you get your answers but the answers are out there somewhere. just keep working with your treatment providers, keeping them up to speed on your problems and symptoms and one day it will all click together and you will have your answers.
