You are doing everything you can do as a mom, whether or not those people realize it. Not everyone has the resources to put their entire family in danger financially, which could have severe repercussions, like they are suggesting. I think you decision is responsible and reasonable, and with good foresight, all things considered. Your facebook friends are saying things they wouldn't understand, and would have to cross that bridge if they came to it, just like you have.

I hope the days pass quickly for you, and get some good news from the cardiologist, and your son will be treated promptly and be healthy.