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Aug 04, 2011, 03:00 PM
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Member Since: Mar 2009
Location: So Cal
Posts: 3,342
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Quote:
Originally Posted by holly40
Hi,
Thanks for the replies. Where Elysium writes, "[FONT=Century Gothic][SIZE=3][COLOR=DarkSlateBlue]I'm just curious how you are so sure that this person's 22q11.2 DS was inherited from his parents?" I never said this, maybe someone else did.
The bottom line is this. You can't have something be something just because you want it to be so.
Holly
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My apologies!! As I read your original post, it sounded as if your issue was with the parents being told their child's issues were from drug related issues as opposed to being genetically handed down by the parents.
So is your argument that the parents are being told the child does NOT have 22q11.2DS and instead being told that his issues are strictly drug related? This is what I got out of your most recent posts. And...is this an adult child? Is the child actually 45 yrs old, or are the parents 45 yrs old. I guess I'm a bit confused on the age thing.
I can understand your concern for wanting them to know what is accurate, as far as diagnosis goes, and I read your point that you can't have something be something just because you want it to be so....but are you saying the Doctors are wanting it to be Drug related, or the parents are? Is this about the parent's denial of it truly being 22q or the Doctors denial?
If the parents are in denial, you're not going to be able to force them to see things differently. Whether anyone likes it or not, people are entitled to be in denial and be ignorant to what is really going on. Where it gets difficult is if their denial is harming the individual who is suffering from health related issues.
May I ask, why are you so bent on getting them to see "the truth"? What is your role in this? Is there harm being done to the child/adult child because of their denial? Are they not seeking appropriate medical treatment for this child?
If they are seeking appropriate treatment and the child is not being neglected in their care, then what is the issue with the adults wanting or needing to believe the child's symptoms are from drug abuse?
How would them believing differently change the outcome of the situation? 
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