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Originally Posted by susan888
Does anyone have any experience with this? My daughter was at the park with her boyfriend and my grandson and had a seizure.....she ended up in 2 ICU's having seizures because they could not get them to stop. These were very scary seizures.....eyes rolled back, toung biting..etc...Ended up at the ICU at a university hospital and they did the EEG.
She is not epileptic. They told me these seizures are caused by emotional disturbance, but they are real seizures (she is not faking). Moved her and my grandson in with us for a few months as she was not able to drive. However, she made some bad choices while here and I took her home (after she was seizure free for 3 weeks). She lost her new job (hasn't worked in 7 years). I just don't know what to think.
This was definitely a very physical seizure (we all saw it in the hospital). They are saying that stress and psychological issues can cause this. She was very sick when she first came to live with us and I had to hire our neighbor to watch our grandson....the last few weeks...her behavior was simply not wanting to be responsible for anything (staying up all night partying with the neighbors and sleeping in the next day when we both had to get up for work).
Any advice would be appreciated......I am just so distraught and lost.....
Thanks,
Susan
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Hi Susan,
Well, this is my story, and don't despair she can get better.
Complex partial seizures, because they occur so deeply in the brain are often not picked up on with a traditional EEG (in fact sometimes they have to be invasive to actually record them). Try if you can, to find a good neuro-psych and see if they might try a anti-convulsant (I do well with Lamictal).
My seizures are a result of Celiacs disease. I was diagnosed as having Celiacs disease a few years ago by a Mayo Clinic Endocrinologist. I was referred to his office because I was having so many funky neurological issues and horrible hypoglycemia (my blood sugar would get as low as 45 sometimes and then, "hello seizure").
It is common with many Celiacs to also have epilepsy. My seizures start in my occipital lobes and then spread throughout my brain - it's a trip because I am usually with it enough to experience the whole thing and keep my cool (lot of meditation helped me with that).
Also, try going gluten free and see if you notice a difference, bet you will. (I have to be completely grain and sugar free - but sure helped with all the neuro problems).
Peace!